For the past 40 years, Stanislaw Burzynski has been treating people diagnosed with cancer, in such a way that the FDA once considered him a criminal. From the banter between Eric Merola, Pete Cohen, and Hannah Bradley, we learn that Hannah decided to go to the Burzynski Clinic after seeing the first Burzynski movie. . When we came home in August it took me until the middle of October to slowly increase my antineoplaston dose up to maintenance dose this is the dose that Dr Burzynski deems is most effective for my body weight. Hannahs treatment options are very limited and her life expectancy is for this type of tumour is normally around 18 months and this is why I started a mission to find people who had the same condition and are still alive today. Since its original development, Dr. Burzynski has improved and refined the formula, and has successfully treated many patients with all kinds of cancers, including young children with supposedly "incurable" cancers like childhood brainstem gliomas. 1967 M.D. By Dr. Mercola, suggested by Dr. Herfert. She is now, 2 years later, completely healthy, living in San Miguel, Mexico and having a great life. If one digs deeper, the true story is a lot murkier. Barring the publication of truly convincing clinical trial evidence by more sources than just Burzynski (given that Burzynski has already shown his methodology for conducting clinical trials to be questionable at best and that his preclinical data supporting his methods are at best weak and usually appear in publications that are not peer-reviewed), if we take in totality the evidence for the anti-cancer efficacy of PB along with all the evidence from the past 35 years for the anti-cancer efficacy (more properly, the lack of efficacy) of antineoplastons, the inescapable conclusion is that PB/antineoplastons mightI repeat, mighthave very modest efficacy against some tumors through the HDAC inhibitor activity of PB. What Burzynski calls antineoplastons are nothing more than the byproducts of the bodys metabolism of the orphan drug sodium phenylbutyrate. Genre (s): Documentary. First, I notice that nowhere was there anything mentioned about enrolling Hannah on a clinical trial. Second, Im not particularly impressed with the sterile technique used for putting her Hickman catheter in, nor am I particularly impressed with the sterile technique used to access it by the nurses, who appear to be rather inconsistent about wearing gloves and a mask when accessing the line. The same is true of every video of them Ive watched on their video blog. The documentary ends triumphantly several months after the events portrayed during the bulk of the film with Hannah apparently having had a complete response to Burzynskis antineoplaston therapy: Let me just first say something before I begin my usual analysis. For one thing, late complete responses to radiation are not as rare as Burzynski supporters imply, as described in this Medscape article on glioblastoma: The responsiveness of glioblastoma multiformes to radiotherapy varies. Please, if youve been told theres no help for u other places give them a chance to save ur life!! Disclaimer:Statements on this website have not been evaluated by the Food and Drug Administration. For instance, in her vlog of December 2, 2012, in marked contrast to past vlogs, Pete is noticeably evasive when discussing her latest scan, and both Pete and Hannah appear uncomfortable: Even more worrisome was a cryptic Facebook post from November 1, 2012: Its been a long time coming but here is our new Team Hannah Blog. I hope Im wrong. State laws and federal laws were created with the intent of allowing terminally ill patients access to experimental therapies that have completed phase 1 trial. I wont be connected to the medicine pump forever! Many aspects of Lauras story are similar to Hannahs story, but one thing is different in that she started out with a less aggressive tumor, which was managed by watchful waiting for a time, until the tumor progressed. The FDA doesnt want to cure cancer. (See Question 2.) I got laid off, if not I would have continued to work. Its utter rot, of course, but Burzynski really did make that claim. Here you can add a photo, or supporting data. It turns out that PB is a prodrug for PA and PAG, which means that the drug is converted into an active metabolite to work. For example, contrast Burzynskis story to a story like that of PLX4032, which was taken through phase I and II trials rapidly and is now in phase III trials. What happened next is described here: I have now been on antineoplaston therapy since the 8th August 2011. Thank you Dr.B that's how we all call him.God bless you. The state of our knowledge regarding PB and cancer can thus be correctly said to be more or less unchanged since late 2011. You are an individual here not a number. His website stated only that he has helped "many" people. Every day you walk in..have an appt with the so called MD..he orders what he thinks would drain you financially & then you sit in the financial office to pay thousands & thousands of dollars for sugar pills that are just a bunch of shit. 1-3 months, Destroy the cancerous genome - remove abnormal genes and cure cancer. It might not have. They are the cutest couple, and their love for each other oozes from the video and envelopes the viewer, sucking him in like The Blob, but in a good way. Remember my post about the use and abuse of the term epigenetics by various questionable practitioners, in which epigenetic effects and changes are invoked not unlike magic (or like another favorite buzzword quantum) to explain why various woo works? So let's take a look at two cases frequently pointed out to me as Burzynski success stories: Laura Hymas (whose website is Hope for Laura) and the aforementioned Hannah Bradley (whose website is Team Hannah ). I was also very puzzled at how the Burzynski Clinic could allow a cancer patient to linger with a fever of 102 F and sometimes higher, accompanied by shaking chills, in a temporary lodging without admitting her to the hospital. Did they draw blood cultures? I sincerely hope Im mistaken. Finally, I fully expect that my not-so-secret other blog will also come under fire for accepting pharmaceutical company advertisements and that that will also come into play in Merolas movie. In the 1970s, Dr. Burzynski made a remarkable discovery that threatened to change the face of cancer treatment forever. However, the results speak for themselves, and after a long protracted legal battle, his methods are becoming accepted by medical institutions. "Over the years, Dr. Burzynski claims to have treated more than 8,000 patients, but his success rates are unknown. Worst of all, rather than publishing his results, hes promoting his results in documentaries by a fawning sycophant whose primary business is to produce commercials and promotional videos for large corporations and demonstrating a large number of other worrisome warning signs of dubious medicine. Moreover, discharging a patient after her treatment for cancer is complete is something real oncologists almost never do right away. Will the second case that I know that Merola will exploit tell us more? Based on the results, a treatment plan is constructed consisting of ANP and additional medications. The truth is being supressed, all because of money. We had to wait for the results of the biopsy for a few weeks and we remained positive. There were a few preclinical studies using cell culture and mouse models, but nothing new in human subjects. On top of all of this, Hannah has been dealing with losing her driving licence as she has had a number of seizures and now has epilepsy. However we recently had worse news in April 2011 Lauras MRI scan revealed growth and changes, she had a biopsy and we learnt that the tumour had progressed into a Glioblastoma Multiforme which is the most agressive type of brain cancer with a much poorer prognosis. The fact that there has been little outside interest in developing the treatment, and that few others have managed to replicate his apparent clinical success, raises questions. Merolas dismissal of Burzynskis critics is, quite frankly, insulting to them and to me. In contrast, chemotherapy and radiation protocols vary greatly depending on the doctor's opinion . The last scan shown was from August 27, 2012. Be that as it may, there were a number of things I found very interesting in this video. Dr Burzynski's clinic has studied different types of cancer. Seizures. She was diagnosed with a very serious brain tumour called Anaplastic Astrocytoma. Merola mentioned how he had been looking for patients before they even went to the Burzynski Clinic and even pointed out Amelia Saunders as one. Merola also makes the unfounded claim that many of the bloggers critical of Burzynski are in the pay of big pharma or work for blogs that are in the pay of big pharma. Stop taking money from my family, be honest when your sugar pills arent working, and have a heart to know when to STOP!!! Rate this book. I just had a scan on the 21st February and it was even better news 77% tumour decrease! Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Contrary to what Burzynski defenders claim, I started out agnostic regarding the question of whether antineoplastons have any value in cancer therapy. She kept me informed of the whole process. At 87 lbs., with cancer all over her body, my 50+ year old best friend was sent home with a referral for hospice by one of the largest hospitals in Houston. to be a victim participant in one of the clinical trials) is around $120,000 a year. These peptides also tell cancer suppressing genes to turn ON. I'm so glad I came.Headed home to finish treatment. In the 1970s, Dr. Stanislaw Burzynski thought to compare urine & blood samples of both cancer patients and non . Dr Burzynski is a very talented and respectable doctor. Laura started having more seizures; she was unable to care for her son; she felt as though her life was slipping away, and so it appeared to be. They were, however, assured that the success rate of such therapy reached as high as 40 percent. Perusing the article, I find there is a fair amount of preclinical evidence that PB has antitumor effects in certain tumor types, specifically colon carcinoma, Burkitt lymphoma, primary acute myeloid leukemia, retinoblastoma, prostate cancer, U138 MG, T98G, U373 MG and A-172 glioma cells, medulloblastoma, and hepatocellular carcinoma. Dr. Burzynski submitted his formulations for Phase I and II clinical trials with advanced cancer patients, a number of which showed objective response without significant side effects (see below "Antineoplaston studies: cancer success reports"). They can do it with their antineoplastines! Indeed, I reviewed the clinical evidence for PB as an anticancer therapy the last time I discussed this, and all I found was a bunch of phase I studies showing safety but no real efficacy. Its fairly clear how Burzynski II will be constructed, particularly if you look at the latest trailer, released just yesterday: Taking the previous trailer and this one together, along with Merolas appearance on Hannah and Petes vlog, I know that Burzynski II will likely consist of four elements: The last time I discussed Merolas forthcoming movie, I mentioned that he had contacted me in December and asked me to appear as a Burzynski critic. Much love and respect to this man and the good he has done. So, researchers can't say it works as an alternative cancer therapy. The operation was a success and they managed to remove nearly all of the tumour. Doesnt make sense to me either! I trust him so much that I've referred a close family member to him for treatment. Moreover, given that HDAC inhibitors do seem to have some efficacy against glioblastoma, it is not unreasonable to expect that antineoplastons might actually have had activity in Lauras case. 11/14/2011 at 10:24 pm . Dr. Burzynski is famous for his research in the field of ANP - Antineoplastons. Is the fact that Burzynski has apparently discharged Laura as a patient slam-dunk evidence that Burzynski has cured her of her incurable tumor? We also learn that Hannah is going to feature very prominently in Merolas sequel as a success story. Once there are no symptoms of cancer, our next goal is to destroy the cancerous genes and to obtain a normal blood genomic test. He is a dedicated doctor. Shame on the FDA and the NCI for there lies, population control propaganda and the horrible abuse of millions of dollars of our tax-payer money to try and shut down cancer cures that have already saved HUNDREDS of lives. The clinic is permitted to treat terminal patients with intravenous (IV) Antineoplastons (ANP), which successfully passed the phase 2 trial. In the process, Burzynski did what he all too often does and misinterpreted her MRI, in which cystic structures commonly seen in Amelias form of cancer as it progresses were seen, as evidence that her tumor was regressing. A few days later we went to see Dr. Burzynski and from the first treatment I saw improvement. I dont know why this treatment isnt used worldwide to save our loved ones. The treatment starts at 1- 3 weeks at the clinic (out-patient), followed by an average of 4-12 months of treatment at home. This, of course, is complete nonsense, as Ive read many of Burzynskis papers (such as they are), delved into ClinicalTrials.gov to look at his clinical trials, examined the plausibility of his claims from a scientific standpoint, and examined the literature from others, both on antineoplastons and related topics. In his movie, Pete points out that these people all led back to Burzynski. But Dr. Burzynski's success did not go unnoticed by authorities with a different agenda. Its also why what Burzynski appears to be doing is an incredible disservice to cancer patients. Reply. Physician Assistant-Certified (Former Employee) - Houston, TX - February 27, 2018. Hannah is 28, has a great personality and has a fantastic sense of humour. Doctors associated with M.D. I've made several new friends from this clinic. The FDA gave some credibility to antineoplastons (complex peptides and peptide mixtures that seemed to be missing in . We wont have long to wait to find out, unfortunately. So lets take a look at two cases frequently pointed out to me as Burzynski success stories: Laura Hymas (whose website is Hope for Laura) and the aforementioned Hannah Bradley (whose website is Team Hannah). All three portray the plight of Demi and the efforts of her mother Mel Knight to save her life as a human interest story in which the family is fighting against all odds to raise enough money to travel to Houston and be treated by Stanislaw Burzynski. Which a lot of conventional drs dont have. The treatments were easy as they are not toxic which means they are not poisonous to the body - they don't harm it. Dr. Burzynski is the author/co-author of over 300 scientific publication/presentations. Alas, they offered false promises and sugar pills with a bang because his tumor has grown 3x the amount in three weeks! The medicine is rich in sodium and I have to infuse 2 litres of it daily (a dose which lasts 90 minutes every 4 hours 24/7) so I drink approx 5 litres of water daily. Sadly, no. But if u want to be cured, please give them a chance! I also work on the repurposing of a drug originally used to treat amyotropic lateral sclerosis that has anticancer properties that apparently Sanofi-Aventis markets. By November 2011, Pete had raised 35,000, which was enough to go to Houston, and thats where his documentary begins, as he and Hannah are preparing to fly to Houston in December 2011 to have a consultation at the Burzynski Clinic. Its like having another baby! Thats a long time for an active therapy to start to work, particularly for a tumor that is as aggressive as a glioblastoma. with honors from Medical Academy in Lublin, Poland. While at Baylor, Dr. Burzynskis research was sponsored and partially funded by the National Cancer Institute. Scientists and physicians are wrong all the time; its the nature of science. I am sorry we dont have the best of news but I am ok. http://www.teamhannah.com/2012/11/01/team-hannah-blog-011112/. . However, he chose to ignore this potentially fatal condition, putting patients' lives at risk: hypernatremia has a mortality rate of 15-20 % 7, 8, 9. Hannahs bravery and resolve once again rose up as shortly after this she started a six week course of radiotherapy. They determined from the pathology reports that how to treat her. In that post, I explained a bit about epigenetics and why its a hot area in cancer research, as well as why histone deacetylase (HDAC) inhibitors are a promising new avenue for cancer therapy. They understand Cancer, cutting edge medicine and how to approach it for the patient. Release Date: June 4, 2010. This is the only clinic Id trust my cancer treatment to! May God have mercy on your souls! Its not clear what sort of workup was done to evaluate Hannah either, what her white blood cell count was, or what her other labs were. This is another example of A governmental agency's being used by Big . If, in fact, he has a treatment that is so much more effective against untreatable cancers than anything we currently have, then he should have been able to demonstrate it by now. What I find curious is the delayed effect. If he were just after money, he would hav sold out and be in a beach somewhere. Its time for Burzynski and Tsuda to put up or shut up. It turns out that it wasn't that long ago. She will be a survivor, and the hope you have given us is priceless. Please research them before you make a move. In any case, heres a recent review article on a drug called sodium phenylbutyrate (PB): Sodium phenylbutyrate (figure 1), a HDACI, is an aromatic fatty acid that is converted/oxidized in vivo into phenylacetate (PAA) by -oxidation. This place is a farce. Tiredness or sleepiness. The reaction of the clinic staff (i.e., rather blas, even though at one point Hannah clearly demonstrates a change in mental status, appearing drunk and complaining of double-vision) made me wonder if this sort of problem was a common occurrence. First, one notes that patients dont see the great Dr. Burzynski right away. Dr. Burzynski was one of the two youngest people in Poland to receive M.D. However, from the video above, it is very clear how I and other skeptics will be attacked. Eric Merola's award-winning documentary showcased Dr. Burzynski's remarkable cancer discovery for all the world to see, and explained how he won the largest and possibly the most convoluted and intriguing legal battles against the Food . Now, Im not a radiologist, much less a neuroradiologist, but I wondered at all the enhancement on the superficial area of the brain, just under where her neurosurgeon must have raised the bone flap to remove what he could of the tumor. But when they . I have an MRI scan at a private hospital every 6 weeks. We appreciate you and your hard work.Michael and family, Not honest- very unprofessional- had one visit never went back. More details can be found at her page on the Burzynski Patient Group website. Certainly, given how much detail hes used in this video and in his vlogs Id expect that if the subject of clinical trials was mentioned he would have included it. Then six weeks later on the 29th November 2011 scan my tumour started shrinking, by 36%. She routinely developed fevers to 102 F, and in one scene her fever reached 103.9 F. She felt miserable, nauseated and weak. See Dr. Burzynski's profile to make an appointment. Since 1980, antineoplastons have been synthesized from commercially available chemicals at the Burzynski Research Institute. With a tumor that size detecting a 10% decrease in size is almost within the margin of error of the test. My mother stumbled upon this place when she was first diagnosed with stage 3 breast cancer in 2014. No, I dont buy Burzynskis excuses at all. Former patients of Dr Burzynski-- many of whom were once terminal and have been cured for years--have gathered to support our doctor. They're even going as far as putting misinformation on Wikipedia . In hopeless cases of brain stem glioma, his trials have obtained a 60 per cent response rate (shrinkage or elimination of the tumour) and survival rate at least five times higher than conventional therapies. February 2010 edited March 2014 #1. It was your messages, together with those of other grassroots activists, that convinced the FDA to grant 12-year-old McKenzie Lowe a right of access to Dr. Stanislaw Burzynski's innovative . Indeed, Chapter 7 is all about Burzynski, whom Somers describes as having invented the most important and successful non-FDA-approved alternative cancer drug therapy ever in this country.. Im Alive thanks to God and his guidance to Dr.burzinsky. He uses Antineoplaston therapy: non toxic peptides and amino acids that target cancer genes and tell them to turn off. Laura Hymas is different in that she provides somewhat more suggestive evidence for a possible antitumor effect from antineoplastons, given the longer period of time since she finished her radiation therapy and since her still being in complete remission five and a half months after her first scan showing no residual tumor. David H. Gorski, MD, PhD, FACS is a surgical oncologist at the Barbara Ann Karmanos Cancer Institute specializing in breast cancer surgery, where he also serves as the American College of Surgeons Committee on Cancer Liaison Physician as well as an Associate Professor of Surgery and member of the faculty of the Graduate Program in Cancer Biology at Wayne State University. We all sat together in the chemo room for an all day affair. It turns out that price for a treatment at the clinic (i.e. Thank You!! Hes a godsend Doctor who has a heart to truly cure sick people. I always get a second opinion from a UK radiologist who confirms there is just a cavity left which should resolve over time. again with unheard of rates of success. Confusion . 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